So you have a diagnosis of Sandhoff Disease, now what you might be thinking. Well this website is dedicated to information, guidance, support, research and honoring our children affected by this dreaded disease. This site is created by parents and all information has come from various on line resources, we have compiled it all together on one site to bring you the most valuable information and resources for this disease. We have a parental support system as well and are here for any families with children diagnosed with Sandhoff Disease, please email us at any time.
Please send all emails to firstname.lastname@example.org
If you have suggestions for this site, comments or find a broken link please contact us to let us know...visit our contact page!
Keep leaving messages in our guest book - it helps us know that we are doing things right and helping you the ones affected by Sandhoff Disease.
We want videos of your children living with Sandhoff Disease. Please email them - cant wait to see them!!
We would like to invite you to join our site as a member. Stay connected - we are all together in this journey!
PLEASE EMAIL US TO HAVE YOUR CHILDS PICTURE AND STORY ADDED TO THIS WEBSITE!